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Recognizing Pain When Your Parent Can’t Describe It

People with dementia can't always say when they hurt. Learn the nonverbal signs of pain and how to help a parent get relief.

When your parent has dementia, one of the hardest things to know is whether they’re hurting. Many people with dementia lose the ability to say “My knee aches” or “My tooth hurts.” Instead, pain may show up as agitation, withdrawal, or a sudden refusal to walk. Untreated pain can make daily life much harder, so learning to read these signs is one of the most caring things a family can do. It’s also a key part of the attention that dementia home care provides each day.

Dementia Home Care in Coconut Creek, FL by Star Multi Care
Dementia Home Care in Coconut Creek, FL by Star Multi Care

Why Pain Goes Unnoticed

Older adults commonly live with painful conditions like arthritis, back problems, dental issues, and constipation. In a person with dementia, the brain may still feel pain, but the ability to find the right words, remember when it started, or connect it to a body part may fade. Some people also forget to mention pain, or they deny it when asked directly.

As a result, pain is often mistaken for a behavior problem. A parent who strikes out during dressing might actually be reacting to a sore shoulder. Someone who refuses to stand might be protecting a painful hip.

Nonverbal Signs Worth Watching

Pain often reveals itself through the face, body, and behavior. Signs may include:

  • Grimacing, frowning, or wincing
  • Moaning, groaning, sighing, or calling out
  • Rubbing, holding, or guarding one part of the body
  • Restlessness, rocking, or pacing
  • Resisting care, especially during bathing, dressing, or moving
  • Changes in sleep, such as trouble falling asleep or waking often
  • Eating less or refusing favorite foods
  • Increased confusion, irritability, or tearfulness
  • Pulling away from touch or from activities they usually enjoy

 

One sign alone may not mean much. A cluster of changes, especially new ones, deserves a closer look. Families who use dementia home care often find that caregivers are the first to spot these small shifts, because they see your parent every day.

Know Your Parent’s Baseline

The better you know what’s normal for your parent, the easier it is to spot when something is wrong. Notice how they usually move, eat, sleep, and react to people. If your mother normally enjoys her afternoon walk but suddenly refuses to go, or your father who usually sleeps well begins waking several times a night, those changes are clues.

Watch During Movement

Pain often shows up when a person moves or is touched. Watch closely during transfers from bed to chair, when helping with bathing or dressing, and while walking. A flinch when you lift an arm, a grimace when standing, or a sudden refusal to continue can point to the source of discomfort.

Look at the mouth, too. Dental pain is easy to miss. Signs may include touching the face, refusing to eat, pulling at the jaw, or avoiding cold or hot foods.

Keep Simple Notes

When you notice possible pain, write down what you saw, when it happened, and what your parent was doing at the time. Note any changes in appetite, sleep, mood, or bathroom habits. A short log over several days can reveal patterns, such as pain that appears every morning or only after walking.

These notes give your parent’s doctor valuable information. Bring them to appointments or share them by phone so the doctor can look for causes and decide on next steps.

Ask Simple Questions

Some people with dementia can still answer simple, direct questions, especially yes-or-no questions. Instead of “How do you feel?” try “Does your back hurt?” or point to a body part and ask “Does it hurt here?” Watch their face and body as they answer, since nonverbal reactions may be more accurate than words.

Report Changes to Your Parent’s Doctor

Only a doctor can determine the cause of pain and recommend treatment. Reach out to your parent’s doctor whenever you notice new signs of pain, sudden behavior changes, or signs that existing pain is getting worse. Sudden changes in behavior can also signal other health problems, such as an infection, so it’s always worth mentioning.

Avoid giving over-the-counter pain medicine without first checking with the doctor or pharmacist, since it may interact with other medications.

Comfort Measures at Home

While waiting for medical guidance, gentle comfort measures may help your parent feel more at ease. A soft pillow for support, a warm blanket, a calm room, gentle music, or a slower pace during personal care can make a difference. Follow the doctor’s advice about specific approaches.

Caregivers as Daily Observers

Caregivers who spend time with your parent every day are in a strong position to notice subtle changes. They see how your parent moves in the morning, how much they eat at lunch, and how they react during bathing. Caregivers trained in dementia care learn to recognize nonverbal signs of pain and to report them to the family promptly.

That daily attention is one of the quiet strengths of dementia home care. When pain is noticed early and shared with the doctor, your parent has a better chance of staying comfortable, calm, and engaged in daily life.

If you or an aging loved one are considering dementia home care in Coconut Creek, FL please contact the caring staff at Star Multi Care today. Call 954-962-0926

Star Multi Care is a Trusted Home Care Agency in Florida including Palm Beach, Miami Dade, and Broward County.

Stephen Sternbach

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